I had a moderately frustrating conversation with Mayo last week. I got conflicting information from different people there about how well I match with people who have already volunteered to donate to me. The good news is that it seems like there are at least a couple more workable possibilities. Another person was scheduled to go to Rochester for testing, but I asked Kay to work on scheduling someone else. After the best donor in the pool feel through, they scheduled my aunt (I know this from talking to my aunt, not Mayo). Unfortunately, she’s a lot older than me, and it’s likely that a younger donor’s kidney would last a lot longer. We talked about maybe doing a paired exchange with my aunt’s kidney so that we could trade for a younger one. That seemed reasonable until I asked if the other one or two decent matches in my pool were closer to my age. It turns out they were. Mayo had scheduled my aunt to come in because she was really motivated (thanks, Jean!), but I told Kay that it doesn’t make any sense to try to trade a kidney from my aunt when there are equally good, younger candidates who have volunteered to donate directly to me. As I said, I’d rather have a young kidney from someone who is merely willing to donate than an older kidney from someone who is absolutely psyched to donate. Kay’s going to try to schedule someone else. I was at least glad to hear that someone else was scheduled. I still sort of have the impression that they aren’t moving with the sense of urgency I’d like, but at least progress being made.
I also want to briefly mention that dialysis has been going okay so far in April. In fact, I haven’t had any trouble with the needles since my fistulagram, even though they didn’t find anything to fix during it.
I need to call my insurance company again since they keep denying dialysis claims because they think I’m eligible for Medicare, even though I’ve already told them three times (via mail and phone) that I’m not because I haven’t worked the required number of quarters according to the Social Security Administration. Ugh.